Meet the girl with her heart outside her chest: Six-year-old is beating the odds after being born with rare and life-threatening birth defect
Virsaviya Borun, a native of Russia, suffers from Pentalogy of Cantrell, which caused her heart and intestines to form outside her body
It is a rare congenital condition that occurs in estimated 5.5 in one million live births
Virsaviya's heart is the size of a fist and can be seen beating through a thin layer of skin
Borun and her mother came to the US this year to seek medical treatment for the girl in Boston
The 6-year-old cannot undergo surgery at the moment because of high blood pressure in her pulmonary aorta
